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- It’s hard when what little energy I have has to go into taking care of myself.
- It never gets easier having to adjust to new limitations due to your illness.
- Medical devices do not make you any less beautiful. 🩷
- I wonder what it’s like to live unafraid of your own body’s destruction.
- Chronic pain is exhausting.
- Honesty about symptoms is not negativity.
- I am more than my illness, even if it doesn’t always feel that way.
- Just because I look okay doesn’t mean I am okay.
- Hearing that my illness is incurable was the hardest thing I’ve ever had to hear.
- You can be happy and still be in pain.
- I’m not sure yet how to balance wanting to have hope with not wanting to get hurt again.
- Support can come in many forms, and online friendships are totally valid.
- My fatigue is not the same as you being tired.
- One of the hardest parts about being disabled is living in a world that wasn’t built for you.
- Some days, life with a chronic illness seems totally manageable, and other days it feels impossible.
- Although I recognize my strength, living with a chronic illness makes me feel constantly fragile.
- Rare disease looks like me. 🦓
- It is hard not to feel like you are disappointing everyone around you when you are not improving.
- I know this struggle is teaching me so much strength, but it doesn’t make it any easier.
- My illness may be a big part of my life, but I will not let it define who I am. There is so much more to me than being sick.
- At times I get sad that I have lived with these symptoms for so long that they are now my “normal.”
- Telling me that other people have it worse does not make my situation any better.
- I do not think I will ever lose a sense of bitterness for my body betraying itself. I will forever hold some level of anger for the loss of my health.
- A migraine is not just a bad headache. 🤕
- Sometimes the grief I feel for my old life is all-consuming.
- There is so much to juggle when you are chronically ill.
- Not abiding by your physical limitations can be very dangerous.
- Exercise won’t cure my incurable illness. 🏃♀️
- I don’t share about my illness for pity or attention; I share for awareness.
- I never imagined that testing “in sickness and in health” would be how my marriage started out.
- You can do everything “right” and still become disabled.
- It’s hard not to feel like I’ve let my younger self down.
- Just because I’m quiet about my pain doesn’t mean I’m not hurting.
- You expecting me to get better makes it hurt even more.
- My illness may limit me, but I will not let it dictate my life.
- I can’t remember what it’s like to wake up in the morning and not be in pain.
- It gets hard not to think about all the time this illness has stolen from me.
- I wish I could go back and tell myself to appreciate what I had more. You never know how quickly things can be taken from you until they are gone.
- There’s no off switch for my chronic illness–even when it is inconvenient.
- Disabled isn’t a bad word.
- Just because I look good doesn’t mean I feel good.
- It’s hard to realize that my life will never be the same as it was before I got sick.
- You don’t need to apologize for having a chronic illness. It’s not your fault.
- I am so grateful for treatments that are keeping me alive, but sometimes I hate them. 💊
- I’m so tired of this sickness.
- Some days I just want to scream and cry and ask, “Why me?”
- Accepting the reality that I’ll be sick forever is hands down one of the hardest things I’ve ever had to do.
- It’s hard to feel like your pain is truly seen when your illness is invisible.
- I know I will never be healthy again, but I still hold on to the hope that I will see some improvement.
- You should never be made to feel like you have to prove how sick you are to anyone.
- I’m not unreliable- my health is.
- Your best is going to look different every day, and that’s okay.
mar 16 2024 ∞
may 26 2024 +
may 26 2024 +